Společnost pro mukopolysacharidosu, z. s.

https://www.mukopoly.cz Phone: 733 690 750 Email: spmps@seznam.cz

Society of Mucopolysaccharidosis has been supporting children with rare metabolic diseases and their families for more than 30 years. We help in the most difficult moments - from the first days after the diagnosis, through the daily care and current needs of children, to accompanying families after the loss of a child. We organize national therapeutic and educational meetings for families, provide crisis intervention, legal advice, support in securing appropriate compensatory aids, and educational activities for the public and experts. We also focus on supporting research, treatment, and publishing activities. We create a community where no one is left alone with their illness or care. Every donation helps bring relief, support, hope, and a sense of security to families.