This annual HAE Junior community project is "rare" and exceptional as it represents a unique opportunity for children and youth with the rare immunity disorder HAE and their parents to meet in person, exchange experiences and learn together. Year after year, more patient families are joining, showing interest in how to reduce the negative impact of the disease on their quality of life. The program usually includes expert lectures, workshops, consultations, and educational activities for children and their parents. 
The Rare educational camp 2023 is planned to take place between 23 - 26 July 2023.