Join Us in Helping
Neurofibromatosis (NF) is a rare genetic condition that stays with a person throughout their life. Awareness of NF in Czechia is still limited, and it may not be easy for people with NF and their families to find clear information, practical resources, or someone with a similar experience.
We want them to know they are not alone.
At NF Česko, we make information about neurofibromatosis more accessible, translate and publish international resources in Czech, and prepare practical materials for people with NF, their families, and teachers. We also organize community meetings where people can meet, share experiences, and find practical information and support.
We work with healthcare professionals, researchers, and organizations in Czechia and abroad and share the knowledge and experience we gain with the Czech NF community.
How will we use your donation?
Donations help us fund:
- translation, preparation, and printing of NF resources,
- meetings for people with NF and their families,
- educational and awareness activities,
- participation in professional and international meetings and sharing what we learn,
- our website and other essential running costs.
Every donation makes a difference. It helps us do more to ensure that people with NF and their families in Czechia have access to information, practical resources, support, and a community they can be part of.
Thank you for helping with us.